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Patient and Public Involvement

FLARE Patient and Public Involvement Group

 

Have you recently had surgery to repair a cut through both tendons at the base of your finger? The University of York would like your views on a new research project.

 

Adults of any age, any background and any walk of life are welcome to join.

What is the research about?

 

We will work with approximately 40 NHS hospitals to study the effectiveness of treatments for injuries in which both tendons at the base of a finger are cut through. We want to find out whether repairing only the tendon that bends the top of the finger is at least as good for patients as repairing both tendons. If it is, this could potentially save the NHS a lot of time and money. 
 

How can you help?

 

We ask you to join a patient advisory group that will consist of about six members. 

 

We will ask you for your views on the project from your personal perspective and experience. There will be a big focus on how to recruit and retain the 310 participants needed for this study.

 

You will be discussing what information patients need to help them decide whether to take part, and how this information should be presented. We also need your views on how to carry out interviews with participants, and on the best ways to share the project’s findings.

 

You will be discussing what information patients need to help them decide whether to take part, and how this information should be presented. We also need your views on how to carry out interviews with participants and paid or unpaid carers, and on the best ways to share the project’s findings. 

 

How much time will it take?

 

The project runs from February 2022 until June 2025. 

We would like you to commit as a patient/public advisor for at least one year.

 

There will be one to two meetings per year that take a maximum of two hours each, or equivalent. The meetings will be held via Zoom. We will offer support with the use of Zoom and individual conversations to those who cannot attend or prefer telephone calls. 


 

How will I be supported and rewarded? 

 

You will have a designated contact person to arrange the support you need to fulfil your role as patient advisor. 

 

You will receive payment for attending panel meetings and reimbursement is available for reasonable travel expenses (though we expect most meetings to be online or by telephone). Payments are in line with National Institute for Health and Care Research guidelines. These include: £25 for activities that require about 1 hour of involvement and £75 for half day activities.

 

How can I join?

 

For more information and to register your interest to become a patient advisor, please email karen.glerum-brooks@york.ac.uk.

What has the FLARE PPI Group been involved in?

The FLARE PPI Group have been involved in providing feedback on what they think the patient may or may not enjoy for the trial-specific activities (such as completing the questionnaires), along with reading the information sheets that will be used for patients in the Trial. This feedback was communicated back to the Trial's management team who altered the Trial's approach in response to the feedback.

Where do the FLARE PPI Meetings take place?

The FLARE PPI Meetings take place virtually over the video conferencing programme, Zoom. This allows members throughout the UK to take part. The time and date of the meetings are negotiated between everyone's avaliability. If you are unable to attend the group meeting, an individual meeting with the PPI representative (Karen Glerum-Brooks) can be arranged instead.

How can I be invovled?

If you are interested in taking part in the FLARE PPI Group, please contact Karen Glerum-Brooks, York Trials Unit Patient and Public and Stakeholder Engagement Manager, who will be able to provide you with further information: karen.glerum-brooks@york.ac.uk

‘One of the reasons why I’m happy to help out with your study is the NHS helped me sort this [tendon injury] out and it’s giving back’

                                                                                                                    Jamie, FLARE PPI Member

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